As 2008 wraps up, I am happy to say that my first full year at the helm of a gluten-free kitchen is over. It was a learning experience and a test of my will and might. But in the end, I feel a large sense of accomplishment as I watch my picky eater gain weight and take on a healthier glow. I can see that without gluten in his belly, he is able to concentrate more in school and take on new challenges.

As our family met for some holiday gatherings, questions were brought up. People are often asking me what happens if someone with celiac ingests gluten. And because my son has limited communication abilities, it's still quite a mystery. I do explain what celiac is often (definition here), and reiterate that ingesting any amount of gluten will damage his small intestines.

Here are immediate symptoms I can see:

1. He will have what appears to be intense stomach pain. He holds his belly and groans.
2. He has a lack of appetite.
3. He is more withdrawn and lacks concentration.

And these symptoms don't go away after a few days. It often takes weeks to get him back on track.

In the long term, the results of ingesting gluten can be life-threatening. I am thankful that we caught this disease early. Many people do not. One in 133 have celiac disease, but very few are diagnosed with it. Those who have it and remain eating a diet with gluten run a strong risk of developing certain kinds of cancers that begin in the intestines (such as lymphoma), as well as depression, infertility and joint pain.

Some other diseases those with long-term celiac disease are at risk for (according to the Celiac Disease Foundation):

• Iron deficiency anemia
• Early onset osteoporosis or osteopenia
  
• Vitamin K deficiency associated with risk for hemorrhaging
• Vitamin and mineral deficiencies
• Central and peripheral nervous system disorders - usually due to unsuspected nutrient deficiencies
• Pancreatic insufficiency
• Intestinal lymphomas and other GI cancers (malignancies)
• Neurological manifestations
• Gall bladder malfunction

It's no small feat to rid anyone's diet of gluten, and the results are not always something we can see and evaluate. But in the end, someone with celiac is absorbing vital nutrients and healing. Their immune systems are gradually building up to healthy levels and their tummies are feeling a whole lot better.

This year, my resolution is to continue to advocate for my son so he can continue to feel better and get the most out of the world around him. And with a stronger likelihood that immediate family members also have celiac, I will resolve to make some appointments so we can try to avoid these long-term affects, as well.

Tip: I like this link to describe celiac to other kids.